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The baby refused to crawl

Medix’ quick actions helped save the life of a 1 year 3 month year old baby, who had urgent brain surgery

June 2009
 
The Amit family turned to Medix, very worried. Their baby, a year and a half old, stopped crawling. All of the attempts to stimulate and persuade the baby did not help; he simply lay down on the spot, put his head down, and started to cry with enormous frustration. So did the parents. 
 
The baby, who was under the care of an infant development clinic because of a developmental delay, was examined by a development specialist, who noticed a growth of the width of the skull. He recommended that the baby be seen by a neurologist, and undergo an MRI. 
 
At this point the parents discovered the maze of bureaucracy – sending faxes, and waiting for the doctor’s response. “It turns out that it’s almost impossible to schedule an MRI for the near future. Some of the places talked about a 2 month wait, and other places didn’t even have any appointments” says the father. 
 
Medix understood that this was an urgent problem, and enlisted help. The father: “the doctor didn’t exactly explain to us what our child had. Only when we returned home, and read what she wrote down, did we understand that she thought there might be a tumour in his brain. We started searching the internet in hysteria what a brain cyst was, to try and understand how serious it was.”
 
In the meantime, the father also contacted his Personal Medical Case Manager at Medix, in order to get a clear, professional explanation, and help for the remainder of the process. Dr Barak assured them, and painted them a clear picture; explaining to them the significance of the situation, and what was expected to come next. 
 
The MRI was done the next day, and the analysis was immediate as well: there was an Arachnoid Cyst, a fluid-filled cyst in the brain that was putting pressure on the brain. 
 
“The neurologist said that this wasn’t the worst news, and that we could help the child by operating. We also felt a little relieved that the problem was fixable, but in any case the idea of brain surgery on a baby is a very frightening thing.” Here, as well, the Personal Medical Case Manager made a difference. 
 
“I don’t understand how I would have dealt with all of this without Medix’ support” says the father, “They helped us not only with expediting the process, which turned out to be life-saving, but they also took care of us with warmth, and care. The doctors in the hospital aren’t always available; they have a lot of cases, but in Medix I felt almost like an only child. I was always able to call up and ask questions, ask for help or urgent advice, and I felt that standing behind me was a supporting and worrying entity; that I wasn’t alone. That’s a really good feeling to have through all of the pressure and helplessness that I felt during this whole thing.”
 
But that was only the beginning of the process. It was obvious that the surgery was urgent, but the search for a paediatric neurosurgeon took several hours. Medix was able to find a paediatric neurosurgeon in Ichilov. They spoke with the surgeon on the phone, and the baby was taken by ambulance to the paediatric emergency room. There waiting for him was the neurosurgery team. 
 
After evaluating the child, the decision was made to operate within 48 hours. The child was operated on using a new technique; a laparoscopy of the brain – ventriculostom – allowed for fluid drainage without inserting a shunt. The operation was successful; today the child is quite developed, with only a small delay. 
 
“If they didn’t operate on my son in time, says the father, “the cyst would have put pressure on the brain that would have led to irreversible damage. The time element was critical. Medix’ quick evaluation of the urgency of the problem – organizing the appointment with the neurologist and the MRI, and through finding the surgeon – saved us. I can’t even begin to explain how thankful I am for Medix.” 
 
The names of the patients have been changes, to protect their privacy